A letter from Kim Marshall, whose son Daniel received
the Gift of Hearing in 2007.
Dear Eileen,
GOHF, and anyone else along the way who has helped;
This letter has been a long time coming. I just wanted
to sit down and let you know how much we really
appreciate everything that everyone has done for Danny
and our family.
First off I would like
to go into a little bit of our history. Wes and I got
married 5 years ago in April. We had our oldest son a
year and a half later. We were pretty comfortable with
life and the way things were going and decided to have
another baby. You never really think about all of the
things that can go wrong when those two little cells get
together to make a little person. I never thought that
we would have a child with any kind of special needs.
Well along came Danny. He spent the first week of his
life in the NICU. His oxygen level was not were it
needed to be, because he was early by 3 weeks. He failed
his newborn hearing screening there but the doctor told
me that it could have been that he had fluid in his ears
from being born c-section. They told me not to worry
about it and that I needed to follow up with another
screening in 3 weeks. So I did. He failed again. They
had us come back in 2 weeks. He failed again. At this
point the audiologist told us we should go see an ear,
nose and throat doctor.
We
went to see our doctor that was also seeing our oldest
son, Walker, for tubes and he sent us to Primary
Children’s Medical Center. We took Danny down there and
had a test called an ABR which is a very long hearing
test that is completed while he was sleeping. This day
was the day that they told us that our baby was deaf. I
don’t recall a whole lot more from that day because I
went into a blur. You never think that you are going to
hear anything like that from a doctor about your 2-month
old baby. Wes and I were devastated. How were we going
to handle this? I really didn’t think that I could. My
baby was deaf. How would he ever be able to function in
the hearing society? I wanted to fix it and I couldn’t.
I started looking into our insurance to see if they
would pay for a cochlear implant after I got over the
initial shock of the whole situation. The insurance that
we had would cover the implant so that was it, we would
find out if he was a candidate and get the CI for him if
he needed it. I started focusing on learning sign
language and working with him and his hearing aids. Then
in the end of November of ‘06 we were informed that our
insurance company was dropping Wes’ employer, which is
also his parents’ company. We were switching insurance.
In the search for new insurance Chris, Wes’ mother, who
is also his boss, looked for insurance that covers CIs.
Because they are a smaller company in Wyoming, any of
the insurance companies that would take them on would
not cover it.
At this point I started my search for some way to get
this life-changing process covered or at least partially
covered for him. We had qualified for a state program
that would help, but they would not cover the whole
thing. We were going to be left with at least half of
the total cost. In turn because we had the state aid, we
did not qualify for anything else that I could find. I
looked everywhere. Our audiologist told me about the Let
Them Hear Foundation. I contacted them and started the
appeals process with the insurance company hoping that
if it was medically necessary that they would reconsider
and pay for it. We were denied yet again. We had
scheduled Danny to have the surgery in September. It was
fast approaching. I was really starting to second guess
myself and our decision to have this done. Wes and I
decided to bump the date back a month, which would be
the latest we could have it done with the help from the
state aid. We were not going to qualify for it again. So
we said that if something had not come about by the
middle of September that we were not going to get it
done. Taylor with the Let Them Hear Foundation contacted
me a week and a half before Danny’s birthday and told be
about the Gift of Hearing Foundation. I was really
hopeful, but was prepared for another denial. I didn’t
think that we really even had a chance. I called on the
20th of August to change his surgery date to October and
prayed that something would come of the application that
I had just filled out. Two days later on Danny’s 1st
birthday, Aug. 22, Eileen with the Gift of Hearing
Foundation and Taylor with the Let Them Hear Foundation
called. Eileen gave me the wonderful news and the best
birthday present that Danny will ever get. I really
didn’t believe her at first. I kept asking if it was
true, if she was sure. Our prayers were answered that
day.
So we went to Boston to receive the Award. I never
realized how many wonderful people there are in this
world. We felt so loved and so much excitement from
everyone at the Gala. I don’t know the words to describe
the feeling we had. You all will have a special place in
mind and my family’s hearts forever. Here we are a
family from a small, very small town in Wyoming and
there are all of these great people that love our baby.
They hadn’t even met him and I could feel the outpouring
of love for him. It is an awesome feeling to have people
that you don’t even know, understand what you are
feeling and support you through a really hard time. I
want to thank anyone who had anything to do with the
decision process on who would get the gift or the Gala
for changing my little boy’s life! I know that a lot of
you have implants yourself so you know first-hand what
it means for him.
He was implanted on October 5th and activated on
November 15th. He is doing wonderfully. He is
recognizing mine, Wes’, and Walker’s voices. He will
turn to look for us if he can’t see us. He has also made
leaps and bounds in the developmental areas that he has
been behind in. I know we have a long road ahead of us
but it is a whole bunch brighter than it has ever been.
I want to thank everyone that our family got to spend
time with while we were back east and all of those who
made this possible. We will be forever grateful. We hope
to see you all again someday and have Danny meet all or
at least some of the people that care so much for him.
Thank you again!
Love,
Kim, Wes, Walker, and Danny Marshall
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